Independent educational evaluations

  1.    As a mom of a child on the spectrum, it was always hard to know if my child had a disability or not. The fact that public schools really do not care about a diagnosis does not help. Yes they will do evaluations and yes they will create an IEP, however they will not give you an independent evaluation unless you ask for one!
    Start by asking the school based support team, and then follow up with the supervisor of psychology for your school. The CSE most of the time can tell you who that is.
  2.   I would ask as soon as your child reaches school age.
  3.   Be sure that you ask for an award letter vs letting them choose a provider for you.
  4.   This can make all the difference. It is often better for you to call around and get a feel for the providers expertise and        knowledge of educational programs both public and private.
  5.  Will the provider do a school visit?
  6.  Will the provider make educational recommendations?

Often insurance will not cover these types of evaluations especially medicaid, you can wait as long as 8 months to see a specialist.

YAI now has clinicians that can do the ADOS, and they take medicaid!

Another thing that was not around when I first suspected that my child may have ASD, were videos. The amount of videos that are on youtube and Vimeo have grown over the last five years. I remember searching for hours to try and find another child like my own.

Today many brave parents have submitted footage of their children Stimming

http://en.wikipedia.org/wiki/Stimming and expressing themselves showing echolalia  http://en.wikipedia.org/wiki/Echolalia.

These videos are hard to watch and I remember watching some and just crying non-stop after because of the frustration and confusion that ASD causes for so many of us.

It seems like a never ending battle trying to explain to parents, teachers and even principals that ASD is a real thing and yes my child has it, and yes it is why he does not always listen or get what you are saying.

While the evaluation (IEE) may not seem important, it can make a huge difference in advocating and finding the right placement for your child.

DOE NYC and NYSED links to know

The site below should show a list of CFN and CSE emails and names,

http://schools.nyc.gov/NR/rdonlyres/D12A14AA-66CA-44FB-8F7F-F61412EFCF91/0/ListofDOEContactInformationforAgencies_FINAL_09132012.xlsx

This was a very helpful website for inclusion programs and directors.

http://www.inclusion-ny.org/region/nyc/contacts?sort=desc&order=Name

I also found some common names below for various agencies in NYC and NYS

http://www.greyhouse.com/pdf/nysd_pgs.pdf

The Quad School Visit

I went to an open house today at the Quad school, its a new school that just opened in the east village. The school is only 18 children from ages 7-14. It is a very promising school. It caters to 2E  (twice exceptional)  ASD and ADHD population. There are not many seats in this school, the chances of getting in are slim.

There is a growing number of children in NYC being diagnosed with ASD. These students have no school options, most of the approved private schools are at capacity.

The NYCDOE needs to make more ASD classrooms and more specialized programs available to the Autistic Spectrum population including high functioning students in NYC.

Nyc doe Silk Road update

Looks like the NYC DOE is cleaning house. District 15 is searching for a new DFA https://nycdoe.silkroad.com/epostings/index.cfm?fuseaction=app.jobinfo&jobid=214704&company_id=15651&version=2&source=ONLINE&jobOwner=1002499&aid=

and there are now there are a total of five Administrative assistant positions that report to the SPT.

https://nycdoe.silkroad.com/epostings/index.cfm?fuseaction=app.jobinfo&jobid=214750&company_id=15651&version=2&source=ONLINE&jobOwner=1002508&aid=1

Super Excited about our new Self-Direct Plan! OPWDD Self Direct Plan

After 6 months of phone calls, mountains of paper work and lets not forget emails our OPWDD  Self-Direct Plan finally got submitted! With our new plan we get 4,000 for summer camp, 2,600 for Music/art therapy, 36,000 for two life skills coaches! and 1,500 for fitness or Gym like YMCA, annually, It’s great! I strongly encourage those who care for anyone with a developmental disability to apply, plus income is not a factor.

The current definition under the DD Act[9] (adopted in 2000) defines “developmental disability” as a severe, chronic disability of an individual that:

  • “(i) is attributable to a mental or physical impairment or combination of mental and physical impairments;
  • (ii) is manifested before the individual attains age 22;
  • (iii) is likely to continue indefinitely;
  • (iv) results in substantial functional limitations in 3 or more of the following areas of major life activity:
    • (I) Self-care.
    • (II) Receptive and expressive language.
    • (III) Learning.
    • (IV) Mobility.
    • (V) Self-direction.
    • (VI) Capacity for independent living.
    • (VII) Economic self-sufficiency; and
  • (v) reflects the individual’s need for a combination and sequence of special, interdisciplinary, or generic services, individualized supports, or other forms of assistance that are of lifelong or extended duration and are individually planned and coordinated.”

The 2000 law also further clarified the application of the “developmental disability” definition for children from birth through age 9. A child may still be considered to have a developmental disability without meeting 3 or more of the above criteria (items (i) through (v)) if the individual, without services and supports, has a high probability of meeting these criteria later in life.

Of course there is more out there on this just google developmental disabilities Act.

  You  tell them to go to  http://www.opwdd.ny.gov and attend a front door session.

email me if you have any questions at nycdoeparent@gmail.com

Sincerely,

NYCDOEPARENT

Impartial hearings and FERPA

It really does seem like parents with special needs children have to file for an impartial hearing every year in order to get results.
It’s a shame because it’s more money wasted on political and legal issues that should be spent on classroom instruction and training
Still I have a right to my child’s educational records under FERPA, and instead I am given a ton of things that I did not even ask for rather then what I need.
Look up FERPA here

http://www2.ed.gov/policy/gen/guid/fpco/ferpa/students.html

It is amazing how quick the DOENYC is ready to waste paper, energy and time producing documents that they know I have already. They refuse to produce the ones I asked for or to document that they do not have them.
Not to mention that SEIS can only go back three years, so what happens when you need a document that is older then that?

The impartial hearing process has
seemed to be the only process that gets results especially when asking for student records.
I recently found out that soon all children in the DOENYC will be logged into SEIS check it out here,

https://sesis.nycenet.edu/userlogin.aspx

Seems to me that if parents are given access to ARIS then why not give access to SEIS?
Parents should not have to file FOIL requests or Impartial Hearings just to get access to records that the school should be able to produce within 45 days as the law states.

Will be creating a petition soon demanding Access to SEIS.
More to come..,