OPWDD , webinars part 200.

Today was a full day and boy did I learn a lot! I went to a developmental disabilities council meeting all about children’s services. I then went to my SD ( Self directed ) launch meeting which was great!
Last I participated in a Parent to parent webinar that was all about part 200 commissioners regulations for NYS.
Where I learned that a major issue for NYC DOE parents is that the city guidelines really fail in their SOP IEP procedures manual and chancellors regulations to effectively translate the state Commissioners Regulations as far as defining what the special education continuum of services are that can be offered at IEP meetings.

It seems that often what takes place around NYS does not take place in NYC. We are left out because of our size which seems to be very unfair to our children. They are denied services and access to basic resources.
For example when is the last time that you saw a Special needs child offered a one to one Para for the district funded or PTO funded after school program? Often the special needs child is not allowed to participate or cannot participate because the ratio is too high.
The district does nothing to help these parents access after school options, which further oppresses a family. It does not empower them to be independent or successful.

I went to a conference at tweed where a special needs parent asked about special needs children and after school services which of course are available to all children at the participating public school.
The chancellor for special education who’s name I will not mention, failed to even attempt to answer this question. She completely avoided it and changed the topic. This is violation of IDEA and ADA at its worst, our children are clearly being discriminated against by not being able or allowed to access after school programs that are available to typical developing children.
Look out for the next Blog that will provide a list of helpful links to the updated Part 200 NYSED section, the SOP IEP NYC book and of course the Safeguards.
I also plan on developing a state complaint resource outline.

DOE NYC and NYSED links to know

The site below should show a list of CFN and CSE emails and names,

http://schools.nyc.gov/NR/rdonlyres/D12A14AA-66CA-44FB-8F7F-F61412EFCF91/0/ListofDOEContactInformationforAgencies_FINAL_09132012.xlsx

This was a very helpful website for inclusion programs and directors.

http://www.inclusion-ny.org/region/nyc/contacts?sort=desc&order=Name

I also found some common names below for various agencies in NYC and NYS

http://www.greyhouse.com/pdf/nysd_pgs.pdf

Super Excited about our new Self-Direct Plan! OPWDD Self Direct Plan

After 6 months of phone calls, mountains of paper work and lets not forget emails our OPWDD  Self-Direct Plan finally got submitted! With our new plan we get 4,000 for summer camp, 2,600 for Music/art therapy, 36,000 for two life skills coaches! and 1,500 for fitness or Gym like YMCA, annually, It’s great! I strongly encourage those who care for anyone with a developmental disability to apply, plus income is not a factor.

The current definition under the DD Act[9] (adopted in 2000) defines “developmental disability” as a severe, chronic disability of an individual that:

  • “(i) is attributable to a mental or physical impairment or combination of mental and physical impairments;
  • (ii) is manifested before the individual attains age 22;
  • (iii) is likely to continue indefinitely;
  • (iv) results in substantial functional limitations in 3 or more of the following areas of major life activity:
    • (I) Self-care.
    • (II) Receptive and expressive language.
    • (III) Learning.
    • (IV) Mobility.
    • (V) Self-direction.
    • (VI) Capacity for independent living.
    • (VII) Economic self-sufficiency; and
  • (v) reflects the individual’s need for a combination and sequence of special, interdisciplinary, or generic services, individualized supports, or other forms of assistance that are of lifelong or extended duration and are individually planned and coordinated.”

The 2000 law also further clarified the application of the “developmental disability” definition for children from birth through age 9. A child may still be considered to have a developmental disability without meeting 3 or more of the above criteria (items (i) through (v)) if the individual, without services and supports, has a high probability of meeting these criteria later in life.

Of course there is more out there on this just google developmental disabilities Act.

  You  tell them to go to  http://www.opwdd.ny.gov and attend a front door session.

email me if you have any questions at nycdoeparent@gmail.com

Sincerely,

NYCDOEPARENT

OPWDD Developmental disabilities Brooklyn.

If you have a child with autism or any other developmental disability, and if you are OPWDD eligible then please go to one of these meetings to find out more information about your entitlements and these non-for-profits that support Families and individuals. BDDC STANDING COMMITTEESeptember 2014-SEAN SENIOR SERVICE UPDATE. To find out more about opwdd and eligibility go to

http://www.opwdd.ny.gov

and attend a front door session.

NYCDOEPARENT