Websites Work in Progress

Legal Informmantion

http://www.wrightslaw.com

http://www.counsel.nysed.gov/appeals/instruction

http://www.copaa.org/?page=LegalAd

REGS complete-Aug2014.pdf

sampleform-912.doc

Autism Sites

http://www.autismresearchcentre.com/arc_tests

http://www.thenhf.com/hyperlexia-separating-autistic-like-symptoms-from-autism-children-who-read-early-or-speak-late-by-darold-a-treffert-m-d/#respond

http://www.nap.edu/openbook.php?record_id=10017&page=R2

http://www.ahany.org

Must Read Books

Health Reference Series ( Choose the one that correlates with the disability ).

I have this one: http://omnigraphics.com/shop/autism-and-pervasive-developmental-disorders-sourcebook-2nd-ed/#description

http://www.amazon.com/The-IEP-Meaningful-Measurable-Objectives/dp/047056234X

http://www.nap.edu/openbook.php?record_id=10017&page=R2

OPWDD

http://www.opwdd.ny.gov/opwdd_services_supports/service_providers/provider_performance/reports/listing

http://www.opwdd.ny.gov/index.php

Tools:

Laser jet printer black ink only

4 large binders

1. For school and IEP paper work

2. Assessments

3. School work

4.OPWDD

Clear sheets,hole puncher, folders,paper,

Marble notebook.  (for daily notes and phone calls, Progress and follow up, date each page)

these fill up fast

OPWDD , webinars part 200.

Today was a full day and boy did I learn a lot! I went to a developmental disabilities council meeting all about children’s services. I then went to my SD ( Self directed ) launch meeting which was great!
Last I participated in a Parent to parent webinar that was all about part 200 commissioners regulations for NYS.
Where I learned that a major issue for NYC DOE parents is that the city guidelines really fail in their SOP IEP procedures manual and chancellors regulations to effectively translate the state Commissioners Regulations as far as defining what the special education continuum of services are that can be offered at IEP meetings.

It seems that often what takes place around NYS does not take place in NYC. We are left out because of our size which seems to be very unfair to our children. They are denied services and access to basic resources.
For example when is the last time that you saw a Special needs child offered a one to one Para for the district funded or PTO funded after school program? Often the special needs child is not allowed to participate or cannot participate because the ratio is too high.
The district does nothing to help these parents access after school options, which further oppresses a family. It does not empower them to be independent or successful.

I went to a conference at tweed where a special needs parent asked about special needs children and after school services which of course are available to all children at the participating public school.
The chancellor for special education who’s name I will not mention, failed to even attempt to answer this question. She completely avoided it and changed the topic. This is violation of IDEA and ADA at its worst, our children are clearly being discriminated against by not being able or allowed to access after school programs that are available to typical developing children.
Look out for the next Blog that will provide a list of helpful links to the updated Part 200 NYSED section, the SOP IEP NYC book and of course the Safeguards.
I also plan on developing a state complaint resource outline.

Know who your cluster and CFN are!

Parents and providers working with the NYCDOE should know who your CFN is and their cluster.
Go here for more info :

http://schools.nyc.gov/AboutUs/schools/support/default.htm

These employees are directly responsible for providing support for the school and the special needs population. They can provide RSA’s transportation reimbursement such as (Form TRV-1) and vouchers for IEE ( independent educational evaluations). Be as familiar as you can with these individuals, the parent centers in NYC that are federally funded do not have the capacity or the knowledge to provide this info and I have gotten this info from other parents independently.
You must advocate for your child!

Were Avonte and Dyasha ever offered an Approved private school???

Why is it that children who are much higher functioning are sent to Private schools and those that truly need it were not?

If the DOE NYC really cared about children with special needs they would have offered approved private school placement to these students. These things do not happen in state approved private schools. The doors are locked and safety is a top priority!

The DOE NYC only offers private school to parents who fight for it, which is just unfair and wrong. D75 schools/seats need to be safer and better looked at. LRE should not mean death and mistreatment.

I highly doubt that the DOE NYC ever offered a state approved private school to Avonte’s or Dyasha’s parents. They never admit (with out an advocate) that they cannot teach a child or provide FAPE and they should. It would save everyone a lot of heart ache and money.

When is the last time you heard a child escaping or dying while in one of the schools on this list?

http://www.p12.nysed.gov/specialed/privateschools/853-statewide.htm

or the non approved schools like Cooke or GERSH?

The children below may still be alive today if they had been offered a state approved private school.

http://www.nbcnewyork.com/news/local/Student-Choke-Death-Brooklyn-School-Department-Education-280682712.html

http://www.cbsnews.com/news/cause-of-death-for-autistic-nyc-boy-avonte-oquendo-undetermined/

http://online.wsj.com/articles/missing-brooklyn-student-found-1411049547

http://www.nycparentsunion.org/archives/1302

NEW Chancellors Regulations updated 2014 NYCDOE

While there are hundreds  of ways in which the DOENYC keeps parents up to date, emails, apps, Facebook and twitter, there is still a lack of notice to changes to the Chancellors’s regulations. Some of these below were written about by chalkbeat and reporters. I still make a point to every so often check the regs to see if any updates were made recently, the ones that I did not hear about around student discipline are very important ( verbal abuse and corporal punishment). The process in which these complaints are made, filed and handled  are missing the parents role. Often it is the parent that files complaints, and yet it does not state how those complaints are followed up, in terms of reporting and a time frame. It has been well over six months now that OSI and OGC have been “investigating” verbal abuse with literally no follow up requirements in these regulations it makes it quite difficult to find out if anything will ever be done about the abuse that takes place in some schools. Parents are often locked out of the process and told to wait. There is no time limit for conducting these investigations.

Verbal abuse

http://schools.nyc.gov/NR/rdonlyres/5A530213-F044-4F0A-ACE9-D27112BBFC47/0/A421103014FINAL.pdf

Corporal punishment

http://schools.nyc.gov/NR/rdonlyres/EDE42781-64EC-4875-A277-88038EB08277/0/A420103014FINAL.pdf

Superintendents selection 

http://schools.nyc.gov/NR/rdonlyres/4DB4CFE4-BF76-4288-A35F-60C4A73E5F7E/0/C3782214.pdf

Parent and student Panels

http://schools.nyc.gov/NR/rdonlyres/84610AAE-5D4D-4140-A82A-DA10B9FE547A/0/D140FINAL103014.pdf

Independent educational evaluations

  1.    As a mom of a child on the spectrum, it was always hard to know if my child had a disability or not. The fact that public schools really do not care about a diagnosis does not help. Yes they will do evaluations and yes they will create an IEP, however they will not give you an independent evaluation unless you ask for one!
    Start by asking the school based support team, and then follow up with the supervisor of psychology for your school. The CSE most of the time can tell you who that is.
  2.   I would ask as soon as your child reaches school age.
  3.   Be sure that you ask for an award letter vs letting them choose a provider for you.
  4.   This can make all the difference. It is often better for you to call around and get a feel for the providers expertise and        knowledge of educational programs both public and private.
  5.  Will the provider do a school visit?
  6.  Will the provider make educational recommendations?

Often insurance will not cover these types of evaluations especially medicaid, you can wait as long as 8 months to see a specialist.

YAI now has clinicians that can do the ADOS, and they take medicaid!

Another thing that was not around when I first suspected that my child may have ASD, were videos. The amount of videos that are on youtube and Vimeo have grown over the last five years. I remember searching for hours to try and find another child like my own.

Today many brave parents have submitted footage of their children Stimming

http://en.wikipedia.org/wiki/Stimming and expressing themselves showing echolalia  http://en.wikipedia.org/wiki/Echolalia.

These videos are hard to watch and I remember watching some and just crying non-stop after because of the frustration and confusion that ASD causes for so many of us.

It seems like a never ending battle trying to explain to parents, teachers and even principals that ASD is a real thing and yes my child has it, and yes it is why he does not always listen or get what you are saying.

While the evaluation (IEE) may not seem important, it can make a huge difference in advocating and finding the right placement for your child.

DOE NYC and NYSED links to know

The site below should show a list of CFN and CSE emails and names,

http://schools.nyc.gov/NR/rdonlyres/D12A14AA-66CA-44FB-8F7F-F61412EFCF91/0/ListofDOEContactInformationforAgencies_FINAL_09132012.xlsx

This was a very helpful website for inclusion programs and directors.

http://www.inclusion-ny.org/region/nyc/contacts?sort=desc&order=Name

I also found some common names below for various agencies in NYC and NYS

http://www.greyhouse.com/pdf/nysd_pgs.pdf