Inclusion and General Education

Comrades! Parents!

Why do we allow the public School system to push our children with disabilities into state approved schools? Schools that provide no oppritunities to be in the least restrictive environment?

When will we learn that Self direction and Self determination is our right in the academic world?

My son with Autism has gained an immense amount of support thanks to the HCBS wavier, without being in a residential facility .

This summer alone he has achieved many goals and valued outcomes amongst Typical Peers!

Baseball, Swimming, and even participated in a Rock Band.

Inclusion is possible.

NYC Council Pushes For More Diversity at Top Schools. Elementary Level is ignored. Hearing on Diversity in New York City Schools and Proposed Int. No. 511-A, Res. 453 & Res. 442

While the NYC Council focus is on the High school admissions process, they really should start expressing major concerns and discrepancies that begin in Kindergarden and throughout the elementary level. Starting perhaps at the G&T and specialized programs level.

“Specialized programs” and OSE or Office of Student Enrollment, have been creating “specialized programs” at the city wide level and at the school level for quite sometime as a way to weed out the best students.

Does anyone remember the magnet and eagle programs? Where did they go? Specialized programs are created so that the NYC DOE can appeal to upper middle class New York families. They also serve as a way to cloak elitism, racism and prejudices that have been an on going issue in the NYC DOE forever.

Last specialized programs are  very weak in their legal structure see part 200 and part 100.2

http://www.p12.nysed.gov/part100/pages/1002.html

Just imagine for a moment what it must be like to navigate through the NYC DOE process for specialized programs if you did not speak English?

What the city council needs to focus on is the relationship between OSE ( office of student enrollement ) and specialized programs including G&T.

The discrimination is not limited, nor does it begin at high school, It begins in elementary school without a doubt starting with the G&T process which is a nightmare in itself.

This of course could be easily solved by administering a test yearly to all students. If the NYC DOE really wants to provide FAPE without discrimination, this would be the only solution as it provides FAPE and a fair chance to all NYC Public School students and families.

Websites Work in Progress

Legal Informmantion

http://www.wrightslaw.com

http://www.counsel.nysed.gov/appeals/instruction

http://www.copaa.org/?page=LegalAd

REGS complete-Aug2014.pdf

sampleform-912.doc

Autism Sites

http://www.autismresearchcentre.com/arc_tests

http://www.thenhf.com/hyperlexia-separating-autistic-like-symptoms-from-autism-children-who-read-early-or-speak-late-by-darold-a-treffert-m-d/#respond

http://www.nap.edu/openbook.php?record_id=10017&page=R2

http://www.ahany.org

Must Read Books

Health Reference Series ( Choose the one that correlates with the disability ).

I have this one: http://omnigraphics.com/shop/autism-and-pervasive-developmental-disorders-sourcebook-2nd-ed/#description

http://www.amazon.com/The-IEP-Meaningful-Measurable-Objectives/dp/047056234X

http://www.nap.edu/openbook.php?record_id=10017&page=R2

OPWDD

http://www.opwdd.ny.gov/opwdd_services_supports/service_providers/provider_performance/reports/listing

http://www.opwdd.ny.gov/index.php

Tools:

Laser jet printer black ink only

4 large binders

1. For school and IEP paper work

2. Assessments

3. School work

4.OPWDD

Clear sheets,hole puncher, folders,paper,

Marble notebook.  (for daily notes and phone calls, Progress and follow up, date each page)

these fill up fast

Were Avonte and Dyasha ever offered an Approved private school???

Why is it that children who are much higher functioning are sent to Private schools and those that truly need it were not?

If the DOE NYC really cared about children with special needs they would have offered approved private school placement to these students. These things do not happen in state approved private schools. The doors are locked and safety is a top priority!

The DOE NYC only offers private school to parents who fight for it, which is just unfair and wrong. D75 schools/seats need to be safer and better looked at. LRE should not mean death and mistreatment.

I highly doubt that the DOE NYC ever offered a state approved private school to Avonte’s or Dyasha’s parents. They never admit (with out an advocate) that they cannot teach a child or provide FAPE and they should. It would save everyone a lot of heart ache and money.

When is the last time you heard a child escaping or dying while in one of the schools on this list?

http://www.p12.nysed.gov/specialed/privateschools/853-statewide.htm

or the non approved schools like Cooke or GERSH?

The children below may still be alive today if they had been offered a state approved private school.

http://www.nbcnewyork.com/news/local/Student-Choke-Death-Brooklyn-School-Department-Education-280682712.html

http://www.cbsnews.com/news/cause-of-death-for-autistic-nyc-boy-avonte-oquendo-undetermined/

http://online.wsj.com/articles/missing-brooklyn-student-found-1411049547

http://www.nycparentsunion.org/archives/1302

Independent educational evaluations

  1.    As a mom of a child on the spectrum, it was always hard to know if my child had a disability or not. The fact that public schools really do not care about a diagnosis does not help. Yes they will do evaluations and yes they will create an IEP, however they will not give you an independent evaluation unless you ask for one!
    Start by asking the school based support team, and then follow up with the supervisor of psychology for your school. The CSE most of the time can tell you who that is.
  2.   I would ask as soon as your child reaches school age.
  3.   Be sure that you ask for an award letter vs letting them choose a provider for you.
  4.   This can make all the difference. It is often better for you to call around and get a feel for the providers expertise and        knowledge of educational programs both public and private.
  5.  Will the provider do a school visit?
  6.  Will the provider make educational recommendations?

Often insurance will not cover these types of evaluations especially medicaid, you can wait as long as 8 months to see a specialist.

YAI now has clinicians that can do the ADOS, and they take medicaid!

Another thing that was not around when I first suspected that my child may have ASD, were videos. The amount of videos that are on youtube and Vimeo have grown over the last five years. I remember searching for hours to try and find another child like my own.

Today many brave parents have submitted footage of their children Stimming

http://en.wikipedia.org/wiki/Stimming and expressing themselves showing echolalia  http://en.wikipedia.org/wiki/Echolalia.

These videos are hard to watch and I remember watching some and just crying non-stop after because of the frustration and confusion that ASD causes for so many of us.

It seems like a never ending battle trying to explain to parents, teachers and even principals that ASD is a real thing and yes my child has it, and yes it is why he does not always listen or get what you are saying.

While the evaluation (IEE) may not seem important, it can make a huge difference in advocating and finding the right placement for your child.

DOE NYC and NYSED links to know

The site below should show a list of CFN and CSE emails and names,

http://schools.nyc.gov/NR/rdonlyres/D12A14AA-66CA-44FB-8F7F-F61412EFCF91/0/ListofDOEContactInformationforAgencies_FINAL_09132012.xlsx

This was a very helpful website for inclusion programs and directors.

http://www.inclusion-ny.org/region/nyc/contacts?sort=desc&order=Name

I also found some common names below for various agencies in NYC and NYS

http://www.greyhouse.com/pdf/nysd_pgs.pdf